Thursday, December 13, 2007

Fighting hard...



"Rejoice in hope, be patient under trial, persevere in prayer." Romans 12:12

Today was very eventful for our little man; since his urine output dropped yesterday, the doctors decided it could be one of three scenarios:
1) his PDA was open causing back flow of blood through is heart causing less blood flow to his kidneys, or
2) an infection had set in, or
3) a possible brain bleed causing less blood flow to his kidneys.....needless to say, Chris & I were suddenly forced to get on the roller coaster ride that is life in the NICU.

We were so blessed to have 10 awesome days with very little complication; although we had been warned there would be rough days ahead, it hit us like a ton of bricks last night.
Along with stress, we were warn and exhausted; the constant yearning to be next to Coy and then the fatigue that comes with being new parents suddenly hit us hard.

So our poor little guy had many tests done last night and this morning; he really gets mad at the nurses when they mess with him; he even kicked the doctor when she was trying to examine his little body.
He had a urine culture, blood culture, CBC, 2 IVs started, brain scan, and echocardiogram all done between last night and noon today. He was worn out and thank goodness slept most of the afternoon.

Good news is the brain u/s DID NOT show any bleeding in his brain! This is a huge victory! They will repeat the study on Monday because bleeding can occur between 10-14 days.
His blood cultures (to screen for infection: bacterial & fungal) were sent off this morning; we will not know if anything grows for 48 to 72 hours; however his CBC did show increased WBC (indicating infection) & decreased Hematcrit (volume of blood in the body) & Hemoglobin (amount of oxygen in the bloodstream) so he received platelets and RBCs last night....please pray for Coy to battle an infection if present in his body...he was started on antibiotics & antifungal medications for precaution...

His urine output did increase today due him being on a medication called Dopamine (used to increase blood pressure); of course with increased blood pressure also comes the risk of bleeding in the brain....

We do not have the echocardiogram results(ultrasound of the heart which looks at the valves, flow of blood). The doctors feel at this point, if he does have a PDA (meaning if the duct is open) they would not seek immediate treatment; a medication called Indomethacin can be given to treat the PDA, however a side effect of this medication is decreased urine output---therefore, not an option for Coy at this point; the second option is a surgery called PDA ligation (where they will go into the heart and clamp the duct off) again, not an option for Coy at this point since he does have a possible infection--surgery is not performed when an infection is present.

Therefore, we watch & wait & pray. We know God is with us & Coy; he loves Coy more than we do. He created him & will take care of him.
Please continue to pray for our precious little man. He's such a fighter and his strength is just amazing to me! Please continue to pray against infection, brain bleeds, PDA being open, lung disease, and GI intolerance. We are so thankful to you all!

6 comments:

Lynne Piper said...

Dear Ann Marie (and Chris):

I'm in your Mom and Dad's bible study on Wednesday night. Just wanted to let you know I've been pounding the Throne Room of God on behalf of Coy. I am in awe of your strength and faith in the Lord. I am praying for everything you've mentioned and more. May God put his mighty hand of healing on our little Coy. Thanks to both of you for being shining examples of faith under fire. I know you all will have many ups and downs, but God has Coy safely in His hands. We will continue to pray.

Lynne Piper

Mandy said...

"Savior, he can move the mountains, my God is mighty to Save, he is mighty to save. Forever, author of Salvation, he rose and conquered the grave, Jesus conquered the grave"
-Mighty to Save, Hillsong

"When you call on Jesus,
All things are possible
You can mount on wings like eagles' and soar
When you call on Jesus,
Mountains are gonna fall
'Cause He'll move heaven and earth to come rescue you when you call

Call Him in the mornin', in the afternoon time
Late in the evenin' He'll be there
When your heart is broken,
And you feel discouraged,
You can just remember that He said
He'll be there"
-Call on Jesus, Nicole C. Mullen

"How great is our god, sing with me, how great is our God, and all will see how great how great is our God"
-Chris Tomlin

Robyn said...

Passing the word throughout Omaha to continue to pray for Coy. I know God is mighty and He is the healer. Standing firm on total healing for Coy.

I am looking forward to an email in another 5 years of his first day of Kindergarten photo. I can see him now with his big smile and snazzy clothes.

Remember it's darkest before the dawn. Try to keep yourself rested--I know how tough that is! We contine to pray for all the things you have asked and more. Coy is a fighter!

Love from Nebraska,
Robyn

Crystal Kovar said...

Chris and Ann Marie,

It is hard getting news about old friends when it is in situation as these, but I know that Coy is in the most loving arms. I will pray for all three of you to keep your strength, and for all the needs of young baby Coy. May God continue to watch over your new family.

Crystal Kovar, Houston

dougandmartha said...

We don't know each other but you are getting prayers from Dallas. You are correct, God loves your little one more than you do and he designed him to bring glory to himself.

Jenny said...

Jason Williams forwarded on our prayer requests to a guy whose cousin delivered a 1 lb 2 oz baby at 26 weeks (named Jackson). He's now a healthy 2 year old!! Here's their website:

http://jacksonstout.com/index.html

I thought everyone who reads the blog should see an example of what prayer can do!!


This poem was written by Jackson's mom...

Tiny Foot Prints

Such tiny hands and the smallest of feet

I watch the line rise with every heartbeat

He should be at home curled up in my arms

instead he is connected to tubes and alarms

As I sit by his bedside tearful and scared

I offer God my life if his could be spared

I ask for the strength to help him fight

This uphill battle night after night

Surrounded by angels sent from above

And the family and friends filled with such love

We conquer small steps one by one

And I no longer question His path for my son

For I now understand that it was His gift

That this miracle child should even exist

And I thank Him for the love that sets Him apart

And the tiny footprints that are now in my heart.



-Elizabeth Stout