Fun in Florida!

We were blessed to spend 4 days in beautiful Destin, FL relaxing and having fun! The drive was long, but not terrible. Coy slept some and didn't get upset until the last few hours. We were aware of Tropical Storm Fay that was supposedly hitting the Florida panhandle, however, we saw little, if none of it's wrath. It did rain off and on for two of the days, however, nothing severe or tropical storm-like. I know some of you were probably thinking, "Geez, they wont bring him to the store, but they'll bring him into a Tropical storm?" Haha.

Coy was indifferent to the beach. He didn't seem to love it, however, didn't mind it either. He took naps under the large umbrella we had set up for him. Of course, I lathered him with sunscreen and kept him covered with a hat and sunglasses while he was in the sun (which was not long, mostly to take pictures).

While Florida was a nice getaway, it was nice to return home as well. Coy slept through Florida, Alabama, and Mississippi, before waking up during a stop in Covington, LA. He was quite tired from all the fun! We arrived home Tuesday night and have been unpacking ever since!

On the way to Florida, I received a call from Coy's pulmonologist in regards to his sleep study results. They were not as expected and quite upsetting to Chris & I. She said that he had 8 apnec episodes per hour (all while off 02) and that she must restart him on 1/16 L while he sleeps at night. I was really shocked at this news because I do monitor him at night with a pulse ox and it hardly ever alarms that he's desating. She is also referring us to a Neurologist, which is really the upsetting part to me. She said his apnec episodes were caused from immaturity of his brain which needs to be evaluated further by a Neurologist. She also said she thinks this is just part of him being premature and that as he matures, so will this part of his brain. So, pray for Coy and total healing of any abnormality in his lungs/brain. I was crushed thinking I had been starving my boy of oxygen for the past few months. I immediately began to panic because I did put so much trust into our pulse ox machine, however, I had no and still have no reason to believe it's reading inaccurately (he plays all day long, eats great, sleeps good, and is growing like a weed at 15 lbs)! The plan of care going forward is to meet with the Neurologist (first available appt is Oct 22nd) and repeat a sleep study at that time. In the mean time, I will fight tooth and nail to keep the O2 in his nose at night. Trust me when I say, it's much easier said than done!

Here are lots of pictures (as promised) from Florida....

The view from our condo..

family photo at the beach...
with daddy's sunglasses on...
smiling at Grandma Kolkhorst..



First time in the sand...

sleeping sweetly under his umbrella...

prop sitting!

having fun at the pool...

having a great time with a bag...
staying dry through a rainstorm...
playing with Aunt Mandy...


Coy playing with Grandpa Kolkhorst...
in the water!