God is so good. I am still trying to fathom what a miracle Coy is. You would think since I lived this experience that I would understand. But I just can't wrap my brain around it. His greatness is just too much for me to comprehend. I look at pictures like these.......jpg)
and am just speechless. All I can manage to get out is "THANK YOU!" God is so good. I am now and forevermore grateful for His plan.
So, good news to report....Coy is now almost off all oxygen!! I have been so stressed over the reflux issue, that I haven't thought much about weaning his oxygen. Yesterday, I thought I'd give it a try and see how he did. I took off his oxygen and hooked up his pulse ox. Sure enough, he did great!! He was between 93-100 the whole time! I am still putting him on the oxygen when with feeds, just to give him that extra boost, but he now fights it! And he's strong!
We had his ECI (Early Childhood Intervention) evaluation today. ECI is a state program that is set-up to help babies/children with developmental delays and disabilities. It is made up of therapists/nutritionist/etc that go to your house and do therapies like physical or speech, etc. Since Coy was born 4 months premature, his development is slower/different than that of a normal term kiddo. He is technically classified as a "newborn" still; 2 weeks and a few days old. Good news is they didn't feel he needed intervention right now! They will come monthly just to assess him, but as of now, he looks good! He is lacking in the Fine Motor skills, he still doesn't track objects, but those are things that will come in time.
Like I said earlier, the reflux issue has been stressing me! Thanks to all of you for all your encouragement and advice! Reflux is stressful, even to full term babies mamas! So, he has done better on the Zantac and Reglan, but I am still uneasy about the whole thing. For my piece of mind, I went ahead and made an appointment with a Pediatric GI doctor. Although, Coy's pediatrician didn't think it was necessary, I think I would rather make sure 'it's not necessary' rather than assume it. I would much rather the GI doc tell me "Coy doesn't need to see me" over down the road telling me we should have been seen much earlier! He has an appointment in 2 weeks and thank goodness we have good insurance and didn't need a referral!
Please continue to pray for Coy! We are doing great and are so appreciative of all the love!
Unspeakable Joy - 11 months old
13 years ago
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13 comments:
Wow, is really all I can say. Thank you so much for sharing and continuing to share this journey, it has been such an encouragement for me and I tell people about Coy all the time. I can only imagine what the Lord has planned for him to do for the Kingdom, he is a fighter! The new pictures are beautiful and seeing him smiling and cozy on the blanket just warms my heart. He is a true miracle and a gift!
With tears in my eyes, because I know what is to be there. GOD is GREAT! We are so happy to hear things are going well for you all.
Always in our prayers,
Anne & Family.
That is so awesome that EI doesn't think Coy needs services. I am an early intervention specialist, myself, and I think that is so great! Plus, I am sure you are working with him on meeting his developmental skills. What a true miracle for ya'll and Coy!
Hi,
My name is Brandie and I am friends with John and Kelly Sherrill. John and i grew up together, he is about as close to a brother as I will ever have. Anyway, I was reading their blog and clicked on yours. I have know about Coy since you met them at HCH. What a cutie he is. I still love the " premie face". Our oldest child Kirby was born at HCH over 12 years ago. We spent 3 months in the NICU while she grew and had many of the same experiences you guys and the Sherrill's had. Kirby weighed 1lb 12 oz and 13 inches long. We had good days and bad days all the while God as gracious and we were able to bring her home only days before her original due date. I was just reminded how far Kirby has come just this past Monday when she was inducted into the Junior National Honor Society at her Jr. High. As I watched her cross that stage the verse you have posted under Coy's pic came flooding to my mind. Tears of joy and amazment flooded my eyes. To be where we are today with Kirby is truly a miracle a blessing a gift. She has gone above and beyond any expectations the Dr's, therapist, specialist ever thought. But then I remember we serve a God who can do exceedingly more than all we could ever ask or imagine and I know that is just a drop in the bucket of God's mercy and goodness to Kirby. I know how amazing these days are for you and for Coy. Coy's life will be filled with many more amazing days. God has great plans and expectations for him just the same as Kyle just the same as Kirby. As parents of a premie who have now crossed into the tween/teen years, life is good.....but God is better. Best wishes to all of you I look forward to peaking in on Coy from time to time.
Brandie Noles
Been there done that and God is Good!!
i have been reading about Coy for a while now and just wanted to encourage you and tell you that you have such great mommy instinct. i agree wholeheartedly that it is worth the copay for peace of mind. my baby girl is 9 months old and past the reflux, but we still go to the doctor whenever i feel necessary. Coy is a true miracle that i am so thankful you shared with all of us.
Amy
Great News, Ann Marie!
I'm so happy to hear the wonderful news about Coy's ECI meeting! That's fantastic! I'm glad you made the appt. with the GI... always trust your instinct, I've learned it's always right! Hopefully they will give you some more insight as to what's going on... or at least just some peace of mind. Coy is truly a miracle, and such a cute one! I am just so happy for you with his amazing progress! We think about you and pray every day... Jaxson loves to see pictures of Coy! Take care,
Ann
I agree..you are a great Mommy. I haven't kept up with Coy in about 2 weeks, so I just caught up. I almost cried reading about your past sleep deprivation. It is so hard to function well without sleep and a good mind, but you will be carried through as you have been. I can't wait to show my kids the newest pictures of Coy.
They will be thrilled. He looks amazing (as do you!!)
beautiful boy and beautiful mama:)
Can't even believe how far he's come in such a really short time.
Praising God that you can get to the Pedi GI in 2 weeks instead of our 6 month wait in Nebraska!!!!!
God is always awesome... we are so blessed... I am so happy to see that you are happy too... Ww keep Coy in our prayers everyday... we can not wait to meet him in person... I hope everything continue to be good for you guys... you deserve a break... and so does Coy...
We sent our love...
The Penaloza's
That is such great news about Coy-we pray for him often! You are so on the ball with ECI and the GI doc. I promise, promise, promise you will be so glad to have all those connections in place should something arise. You are doing such a fantastic job staying on top of everything! We just saw our GI doc yesterday and I left so thankful to have him...sure her peditrican could handle her reflux and constipation(both so common with 24-26weekers), but he really "gets" preemies. Again, you are doing a great job!
Christy - Mom to 26wkr
What a beautiful and miraculous little man you have there. We are acquaintances of the Sherill's and I got to your blog through his. I just wanted to say that the scriptures you post at the beginning of your entries are so appropriate and encouraging. My head hurts from crying while viewing your pictures and reading the entries. Tears from the shear goodness of our God - his grace is unfathomable. Thank you for being there for preemie moms and also for the rest of us.
JeanAnn Wiggins
I think the GI consult is a good idea, if for no other reason than it gives you guys a second pair of eyes to make sure that Coy is doing well, and someone who is used to prescribing the reflux med.
And I am so glad that the Zantac and Reglan is working for you guys and that the ECI eval went so well. Coy is amazing and of course he's in our prayers!
Hello. My names is Wren. I live in Valley Ranch (Irving), Tx. I heard about Coy through Heather (your hairdresser). While I chock on tears of sadness and joy all at the same time - God chose the most perfect two people for Coy. My prayers go out to all of you as you experience the love, joy and ALL of God's miracles along this journey. "... and this to shall pass".
He is such a precious little boy. I enjoy the pictures.
Father, in all your Grace and Glory may the Power of Your Love and Healing Hands Bless this precious family.
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