Friday, April 4, 2008

good news, bad news

first, the good news...

We had a visit to the Ophthalmologist, Dr. Hittner, again. She said and I quote, "His eyes look terrific!" Of course, she always gives her disclaimer speech of, "However, ROP is like cancer, it can always come back." I am not even going there! We don't see her back for 3 weeks! It really takes alot out of Coy traveling--especially down to the medical center from our house--so I am so thankful that are doctor appointments are becoming few and far between.

now, the bad..

The reflux has not improved since feeding him just plain breast milk vs. the fortified milk. Please continue to pray against this! And thanks to all you preemie (and non-preemie) moms for all your advice and encouragement! I can use all the info you can give! I really hate seeing him developing this reflux. I guess I always had a gut feeling that he had it, but it was very mild at worst, so I thought maybe it would go away. No such luck. I have talked to his Pedi today and we are starting him on meds that will hopefully help.

Here are a few pics from today...(they were taken with my cell phone, so they're not the best quality)...



15 comments:

Hilary said...

Coy~ you are such a cutie!! Glad to hear about the great eye check-up but was sad about your reflux . Hopefully it will get alot better with your medicine..you are doing so good baby Coy...you have come such a long way baby!! Have a great weekend :) Mommy you are doing such an AWESOME job :)

FalkFamily said...

He is just the cutest thing - I can't help but smile when I see his chubby little cheeks - I don't even know him, but I just want to kiss them - it's a mom thing, I guess. My son was 3 weeks early and he had reflux. I wasn't crazy about the meds, but it made such a difference - he went from screaming in pain to being so happy after each feeding in a week that I quickly became okay with it. You guys are all still in our prayers.

Anonymous said...

I have followed your blog and it is just such an amazing miracle! I had a 35 week baby this fall and have had an up hill battle with the reflux issues. We actually tried some elimination diets such as no dairy and no soy (you would be surprised where all in pops up) so that my milk did not have those things in it. It actually really helped quite a bit: it takes up to 2 weeks to see if it is going to work. We still have the incredible spitting machine but between meds and the diet change he is a lot more comfortable and gaining like a champ. My prayers for continued healing and unending faith are with you and your family.

Anonymous said...

My 26 weeker also has reflux and prevacid has helped her a lot. I also found a good internet forum www.momswearingpuke.com that you might want to check out. It's a good source for ideas and support. I hope the meds kick in for Coy soon and he gets to feeling better. I know how distressing it is to watch your baby suffer. Still praying...

Crafty Hoosier Gal said...

AnnMarie,

My cousin was a preemie, and had reflux. She had a minor surgery when she was a child to fix it, and she has hardly any problems now as a grown adult and mother of three. I will say a prayer, but know that there are those who have gone through what Coy is going through and have turned out ok!

Jenn R said...

I found this blog from Confessions of a CF husband and just finished reading every word. I have to say, I am just totally blown away by how well little Coy is doing..he looks great! And he was born at 23 weeks...Wow! Our God is good, you have been so blessed.
I will continue to pray for Cory to continue to grow (looks like he is doing well on that one...he is sooo darned cute!) as well as to be successfully weaned from all oxygen.
Jenn from NY

Bonky's Mom said...

I'm a newer reader and love your blog and seeing the miracle of Coy's life! Our little guy had reflux...smaller feedings, etc. didn't work for him, but we had a great experience with Zantac and then "upgraded" to Prevacid which worked beautifully. He outgrew it by about nine months. Coy is a doll!

BonkLand
www.morebonkiesplease.blogspot.com

Anonymous said...

Your blessing is one of the most beautiful little boys I have ever seen. I hope that his reflux clears and as he continues to grow may God continue to show you His great love for your family.
Press on in Christ.
Tessa Clark
Missouri

Robyn said...

Praying that the meds will help and the reflux will be GONE! Praise God for the awesome eye reports.
Hang with the reflux meds, as a mom of 3 with reflux (my 6 yo is still on meds), I know what you mean. Meds might help his sleep--it did my #2 & #3 kids.
Much love & prayers!

~j~ said...

Hello... just stopped in to see how Coy is doing... simply darling I see :)
understandably you are a concerned mommy, poor dear, what an uncomfortable feeling for him to experience. We will keep asking the Lord for wisdom and of course for a healing of this for your little man.
peace and strength to you all,
julia

Esperanza said...

Ann Marie... My doctor prescribed zantac... it really helped him as I told you...I was breasfeeding with my breast full so I had to pump before feeding him... so my breast would not be that full... it really helped a lot... of course that increased the production and it was kind of painful for me but it helped him in the long run... I think this can help...
Prayers are always in Coy's way... please do not forget about that... He is so big and beautiful... and he is getting chubby... He look like he is weighting more than 8 pounds... We send our love to your precious family
Esperanza Orlando & Liam Penaloza

Anonymous said...

Hi Ann Marie & Chris. I'm friends with Kelly Ma and Taneal Arri and have been following little Coy's journey over the past few months. My son, Benjamin, was born at 28 weeks back in September. Reading about your NICU stay brings back so many wonderful, scary, exhausting, and praise-worthy memories. God is awesome, isn't He?

Anyway, I just wanted to encourage you that it all just keeps getting better! My son was on an apnea monitor, etc. until just a few weeks ago, and already they are a distant memory. He also suffers from severe reflux. He's on his second med--switched from Zantac to Prevacid, which works much better--and he sleeps upright in his swing. Also, he's been on dairy-free breast milk, which helped tremendously. But he's gaining weight like crazy and has already caught up with his birthdate growth chart!

I'm sure you are exhausted and ready for "real life" to begin. It will be here before you know it! Enjoy every minute with your "little" man--he won't be little for much longer!

Blessings ~ Dawn Adkins

Anonymous said...

I have been keeping my eye on your blog (thanks to KU) and Coy looks so good! His fat cheeks are so cute i could just kiss them! He is a doll and how wonderful that he is doing so well!

Anonymous said...

Ann Marie, Chris and Coy,
All I can say is God is really showing his work through Coy! I found you u tube movie first through a friend she said that I had to read about what miracle Coy has been. Although I have not had time to catch up with the whole story which I will defiantly will. I’m just in a utter amazement speechless! Coy was meant to be and he will do great in this world! I think he was sent here like my daughter to teach doctors that God is the higher power that if you truly believe in him that everything will be wonderful.
I had lost 3 pregnancy one of them at 21weeks our son Simon do to the incompetent cervix in 04. Since then we had our daughter Cecilia. I had a molar pregnancy. The doctor’s told us to abort that she would not live and I had a very high chance to not make it either. I could never defy God. We choose to keep her. At 9wks I was on bed rest and 3wk in the hospital. She was born at 28wks 1lbs 4oz 11 ½ inch. By the grace of God she had no surgery barely escape NECK and meds cleared the PDA. She is left with a hyper thyroid which is treated by medicine. She is a happy healthy very smart 2 yr old. She is small only 18lb right now but growing in her own curve!
I had to laugh at Coy batting and kicking at the nurses. Being the headstrong is what got him here and you guy too with a lot of help from God. I will have to warn you that the headstrongness will not go away. Ceci is one of the most headstrong people I know besides me. Hopefully she will one day fight for all the other babies out there like I fought for her.
I would love for you to check www.weebundles.com we had gotten Cecilia a doll made to her measurements. I have found it so neat to see people reaction to say she could not have been that small. I have held that doll kind of in Kangaroo care style. Believe or not you my experience that now I do miss that time. May God continue to bless your family and those around you! We will be walking in MO on April 27, 2008 for March for Babies I will keep your family in my thought as we walk.
God Bless
Leah
www.duncanpumpkins.com

Madeleine Frazier said...

Hi Chris and Annmarie Coy is looking great!He is so cute.I'll pray for him and your family every night.I PROMISE!I hope he gets better every day.I hope he likes the puppy.I hope I help Coy by praying for him every night.I hope I see all of you guy soon!LOVE,Madeleine Frazier