update

Thanks for all of your thoughts and suggestions! I can't tell you how much "experienced" moms help me!

We had a visit with the GI doctor today. I feel much better regarding the reflux/DGE (Delayed Gastric Emptying). He had another scary vomit/choke episode yesterday 3 hours after eating. I didn't even think of his DGE being worse as the cause of the worsening reflux/ lowered intake. But when talking to the GI doc, it totally makes sense. We are stopping Reglan and starting on a low dose of Erythromycin which helps stimulate the stomach and empty it. Hopefully, this will help with the feeding/reflux issues. We will stick with Zantac and try the Erythromycin; if no improvement in one week, I will be calling the GI back. He also suggested we stick with the Enfacare and only change one thing at a time. Thanks again for all your cares & concern! Reflux is a much larger issues than just "spitting up". I know all you reflux moms feel my pain!

The GI doc was very concerned when I mentioned the recent bradycardias and apneas. He suggested I call his Cardiologist immediately due to his heart arrhythmia, WPW. Coy did wear a holter monitor that I have not been informed of the results on a few weeks ago. I have a call into them but am waiting to hear back.

I also feel better regarding the apneas. When I told the GI doc that I can physically see his chest rising when his monitor beeps apnea at times, he told me about Obstructive Apnea. This means his diaphragm is physically moving, however, he's not moving air in or out. He also said, if his oxygen saturations drop during these episodes, they are real. I brought him home, and his monitor starts beeping again. I can physically see his chest rising, but also had him hooked up to the pulse oximeter. He was sating 96% throughout the entire "apnea." So, it would be my educated guess, that majority of these are false. I will still inform the cardiologist & pulmonologist about these "apnic" episodes.

We followed up with the Pedi; the blood culture was negative. She feels everything is okay, most likely reflux/ DGE related symptoms that will hopefully be helped with the Erythromycin. She has no explanation for the recent bradycardias or apneas; feels that most likely the monitor is wrong. It will be downloaded tomorrow, so we shall see.

Thanks again for all your prayers and thoughts! We are doing much better today. I am feeling better. When things starting going down, it is just overwhelming. The eyes, reflux, breathing, heart....Thank goodness we have such wonderful doctors and I have awesome support from family, friends, and all of you!