Update from recent appointments....

"Every good and perfect gift is from above, coming down from the Father of the heavenly lights, who does not change like shifting shadows. He chose to give us birth through the word of truth, that we might be a kind of firstfruits of all he created." James 1:17-18

This Monday and Tuesday we were out and about all day at doctors appointments. On Monday, we saw the Pediatric Pulmonary doctor. This was the first time to meet her; she was very thorough and I was really impressed with her. It's hard when we see a new doctor because I have to reverberate Coy's entire NICU stay. They do have most of the info in their computer system, but I guess it's easier for them to ask! They always seem impressed when I know all the specifics, but trust me, those are things that are permanently etched in my memory!

She listened to Coy's lungs and said they sounded "great." We also hooked him up to the pulse ox and waited for him to fall asleep on room air, he sated 98% most of the time, which was awesome! I told her he's off the oxygen majority of the time and I do frequent spot checks on his sats. She would prefer he stay on the oxygen at all times until he hits the 10lb mark. Her concern was not his saturations, however, being off oxygen, he is burning more calories to breathe and therefore, may not grow as fast. She's the specialist, so I will listen! He really hates the cannula in his nose now, so I have to fight to keep it in. Let's just say most of the time, he pulls it out and there's nothing I can do about it!!

She did order a chest xray, which we had done. The last xray from the hospital was done in February and it was not pretty. So far, I have not heard the results of this, but in this case, no news is good news. We will see her back in 2 months and, hopefully, at that time we can d/c the oxygen all together!

On Tuesday, we saw the Pediatric GI doctor. He was also great! He did not feel that Coy needed any testing at this point, ie Swallow study, Upper GI, etc. He liked his weight gain, and current medications, so we will continue on with everything the same. We see him back in one month.

I also took him to his regular Pediatrician for general check-up and to evaluate his right leg. I noticed sometime last week that his right leg is more stiff than the left. His right foot is turning inwards, while the left one is turning out. He kicks the right leg and majority of the time, it's easily moved, and he has good hip flexion, being I'm overly paranoid about everything, I wanted another opinion to see if this was normal. This alarmed me because a) it can be a sign of CP (cerebral palsy) and b) I didn't want it come time for him to crawl and for some reason he couldn't due to a deformity with his right leg/foot. Our Pediatrician evaluated him and said everything looked okay. I have been exercising his legs and watching they way he is positioned more closely, and I've already noticed it's less stiff and his foot is turning outward more. However, I am also going to call ECI to take another look just in case!

Coy also began tracking objects! I noticed he was more focused on my face and he even smiled at me! It was such a magical moment!

Please continue to pray for Coy's eyes. We see Dr. Hittner again in one week. Although, I am asking God to heal his eyes completely without intervention, I am calm in the fact that God has brought good out of every bad. He's in total control, at all times. If Coy's ROP does return, there is a reason for it, even if it's only to just praise Him!

I had a hard day this week accepting that Coy is going to have more issues than most babies/kids. I want him to have every opportunity in life to thrive, be happy, successful, and healthy. God is reminding me that Coy is perfectly knitted together by Him, and for that, I am so thankful! He is such a blessing!