Coy had an alright day. His feeds were increased to 19cc and is now getting all of his nutrition from his mama's milk. This is a big step for us and pray that he will continue to tolerate his feedings and the amount of milk he gets will steadily be increased. Coy received his last dose of steroids this morning. He has gotten them for the past week and we've seen major improvement in his lung function over this time. Now that he is off of the steroids there is some concern that his lung function will decline. Please pray that his lungs will continue to strengthen on their own and that this last round of steroids didn't just mask the problem but provided the necessary growth and development that Coy's lungs need.
Coy's urine output was lower than it should be today. Please pray for pee.
The amount of oxygen he is requiring has been creeping back up the last few days. Please pray that he will require less oxygen going forward.
Ann Marie allowed me to have my turn at kangaroo care today. Coy spent 3 hours on my chest. Father and son enjoyed some solid nap time. Mom stayed close by keeping a watchful eye on us making sure we weren't misbehaving!
Please pray tonight for one of Coy's NICU neighbors, baby Emily, that lost her fight today. She was a micro premie like Coy and was unable to overcome the health challenges she was faced with. Her parents spoke very little english and often needed a translator to understand the doctors. Today no translator was needed, they were crying the universal language of pain and suffering. Please pray for them.
Unspeakable Joy - 11 months old
14 years ago
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7 comments:
So sad about Emily. Our prayers with her family. I know that most be hard on you too... Try to keep a happy face throug all of this... I know Coy can feel that...
God please let Coy's lungs keep getting stronger and normal soon... Please...
Esperanza Orlando & Liam P.
Chris and Ann Marie, I continue to keep you as well as Coy in my prayers. I said an extra little prayer in church for you this morning. I know it must be difficult watching all the other babies and families around you suffering through this horrible ordeal and then having to not feel guilt when another child dies while Coy keeps fighting. Keep up the wonderful faith I've seen through your blogging. I just KNOW Coy will show his "grit" as his father has done so many times. And it sounds like Ann Marie is the "grit mama". With love and prayers. Vicki Willis
Hi! Yall dont know me, and I dont really know yall, but I feel like I do. Your blog has been passed on along with updates from Coy's grandmother to our church prayer team here in San Antonio. The Riverside Community. I want you to know we all talk about Coy all the time and pray for him daily! You are being covered and lifted up in prayer. Take rest that when you are too tired to hold up your arms, there are MANY holding up your arms for you! Also, I have a friend whose daughter was born at 24 weeks and she is now - after many weeks and months - at home and healthy and beautiful. No lasting effects that they can find. Praise Jesus. I pray that you will be encouraged and uplifted today. Seek him DAILY and He will give you the grace for each day! Rest and be honest and real with where you are...He values honesty and understands. Love to you!
God bless Emily and her parents. Eternal Rest grant unto her and may Perpetual Light shine upon her and give her peace. Through Christ our Lord. Amen.
We only know you through your blog, which was forwarded on to us in the form of a prayer request five weeks ago. You and Coy have been in our prayers every day since. Our three year old son and five year old daughter pray every night for "Baby Coy", and love to ooh and ahh over his pictures. Though we'll likely never meet on this side of heaven, please know that strangers everywhere -- strangers, but brothers and sisters -- are praying for you.
By His Grace,
Geoff and Laura M.
ann marie...
i sent you an email back. (check your junk folder because my email address gets put in there sometimes.)
prayers for emily and her family. and prayers for pee and lung function. thanks for the update!
nicole
Hi, my name is Ambra. I know your sister-in-law Jenny, we played volleyball together at Cy-Falls.
I am a mother of 3 preemies..my last was my daughter, Lilly, who was the earliest at 28wks. She was 2.14pds & dropped to 1.10pds w/n three days. Lilly suffered from a severe pulmonary hemmorhage(bleeding in the lungs). They brought her back by resitating her. She was at Texas Children's for three months. She had NEC, PDA, on lasix every other day(until the day she came home), ROP, numerous blood transfusions, PIC lines in all the time(infections from PIC-clot around her heart)& she walked away with only having chronic lung disease! Lilly was on the oscillator for awhile, then vent, CPAP, nasal canual & off to room air(2 days before coming home). Lilly required O2 for so long she now suffers from CLD. It is not a big deal...yes, she does require breathing treatments, but nothing that can't stop her from doing something. Honestly, we are just glad she is here with us!!
I would love to get your email address. We have been through this three times & believe me when I say it totally drains you. Just keep staying positive(I know what its like when doctors are so negative). Have faith & trust in the God as he works his miracles on Coy.
Lilly is on Carepages-as an inspirational story. If you have time please stop by, look at pictures, read her story & daily progress. Carepages.com sign in & she is under the name preciouslilly. Please, feel free to ask any questions. Will keep your family in our thoughts & prayers. Ambra
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